How about the rest of the team? (That is us, and I guess it also includes you.)
Elizabeth is not really able to have much influence over what we say about her. We have told her that we are keeping in touch with you this way. When we think about our needs, it can be more difficult to say.
We all agree we are exhausted, and can easily get exasperated. We are having to deal with the uncertainty of day to day, and what might be happening over the next weeks and months. Perhaps the tiredness helps because it encourages us just to fix on the day ahead, and what we are having for tea.
Liz had a spell of a couple of hours in a very supported wheel chair today. This was to help her chest, muscle and body tone, but it was quite a strain on her system, and her right leg suffered a lot of tremors. They did stop when I held her foot, so I held her foot for a few hours. We had to ask for her to be lifted back into bed because it was a real endurance test.
Elizabeth's school/uni friend Anna came to see her in the afternoon. Elizabeth is not really able to interact because she is so uncomfortable, she is largely focusing on getting by, and can't manage conversation with yes/no which she was doing before.
We talked with N her nurse for the day about finding something to play music to Liz. She had another tough day. But she did sit in a supported chair.
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It's good of you to keep looking at this. It could go on for a while. Today I was falling asleep in the waiting room, and musing that...
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We all continued to be touched by the never ending love and support our family receives every day. It has not wavered, even as the time goe... -
"I have news" said Elizabeth when we arrived this evening. At 4:15pm Liz was told that she has a place at Barclay House. Mercifu...
Dear Andrew: I have been reading your blog every day. I am constantly thinking about you and Elizabeth... honestly you are present in my mind for most of the day. Thank you so much for sharing your journey so openly and intimately...allowing us to "hear" your thoughts, hopes and fears. I am so happy to hear how much support you have had from people around you. You are wonderful and you have planted love in a lot of people. Now is our turn to support you. I am also awed by your faith, positivity and openess to what life brings. All my love to you, Elizabeth, Margaret and Joanna. Yours, Monica
ReplyDeleteMiracle # 11! Sitting in a wheelchair. Of course this was exhausting for Elizabeth. No doubt it took all of her strength and will power. Encouraged over here. Hugs xxxx
ReplyDeleteDear Andrew, Thank you so much for writing your blog. Dave and I have been reading it each day. be assured of our love and prayers Helen and Dave xxxxx
ReplyDeleteDitto Mary W! It is good to take it one day at a time. I like it that this is what Jesus says too. Hugs xxxx
ReplyDeleteExactly what Mary said, it's a wonderful achievement for Elizabeth to sit in her wheelchair! I'm sure it was exhausting, but know that we here in Ohio continue to pray for strength, endurance, and healing for Elizabeth... and peace and comfort for her family and caregivers. Keep up the good progress, rest as you can. Many prayers, Amanda Lehmann in Cincinnati
ReplyDeleteJust want to let you know that her friends from Mizoram are praying and thinking of her. Thank you for the updates.
ReplyDeleteMary, Mizoram
We are reading your blog everyday. Thank you for the updates. I know it must be so difficult to write considering the trauma your family is going through.Wish there was some way we could help ease your pain. Tonight Susie shared a voice message from Liz,where she laughed through the whole message, her laugh is so infectious. She's in our thoughts and prayers, and so are you. Liz is a fighter, she'll come through. Please be strong, and take care.
ReplyDeleteContinuing to pray for energy for you all and healing for Liz. Thank you so much for using what little energy you have left to keep us up to date on everything x
ReplyDeleteTroubling to hear about the continuing discomfort and tremors. But good that she could use the wheelchair a bit.
ReplyDeleteMay the peace of our Lord Jesus who is ever present fill your minds and souls afresh each day. Take one step at a time. Moment by moment. Cling onto Jesus Trust God is with you always and that he has great plans and always can bring peace during these horrendous times we all face in different ways and circumstances. Keep holding on. Enjoy each moment you see a new challenge overcome by God's grace and power. Liz is safe and in good hands. Holding her and all of you and your family and friends in prayer. Standing by you through this tough situation. Be encouraged by the positive experiences. Hard to be patient sometimes and to trust God but stay firm on the solid foundation that is our Lord Jesus Christ. Love and hugs Hannah R Hackett x
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