Message Eighty One

Liz and I have been discussing what it is like to live with 'complete immersion' TV.
For many patients, there is not a lot to do, and the TV is company.  Culturally it's assumed that the TV's is on in all bays all of the time.

This is how our discussion went.

Grade the programmes that are on every day from 1 to 10.

10 = Worth watching.
5= Don't mind it being on and might watch snippets.
4= Don't mind it being on, but would prefer not to be exposed to it.
3= Deeply boring.
2 = Down right trash.  Should be deleted from TV repertoire
1= Actually quite distressing and painful to endure.

Here is the outcome.

5 - The News, Nature programmes, The Simpsons, Gogglebox
4 - Bargain Hunter, Grand Designs, Under the Hammer, Antiques Road Show,
3- The Chase, Pointless, Britain's Brightest Family, Egg Heads, Tipping Point, Escape Down Under
3- Take me out, James Martin (cooking show), Nickelodeon (Ultimate Spiderman)
2- Jeremy Kyle, Traffic shows, 999, Crime Thrillers,
1- Hospital dramas (Casualty), Ghost dramas. (There could be a law suit pending.)

Elizabeth says "the egghead's grand design for wall to wall gogglebox is pointless, putting her under the hammer.  She is reaching the tipping point. Take me out, I need to escape down under."

Message Eighty

Friends/ Family,

Elizabeth continues to work hard at her physio.  That's cycling, and doing sit-ups.  Movement in her left hand seems to have slowed down.  She continues to use it as much as she can because it must not think that it is being let off.  She is standing with minimal supervision these days.  Yesterday Alice and David from our church made an interview with Elizabeth of her experiences.  When it has been edited a copy will be given to Liz, and she may share it with us all.  There are long days on the ward so her continued visitors are appreciated.  Today Graham and Isabel visited with a beautiful lemon cake.  Jo and I partook of it in the evening (oh no, crumbs in the bed.)

Here is a picture we took of our family outing on Sunday.

Trip out to our one of our favourite restaurants - Shanghai Moon.

Message Seventy Nine

Margaret's Cousin Andrew is a speaker at a youth event in Scotland called 'Powerpoint'.  The theme of the event was dealing with suffering.  A few weeks ago Andrew asked Elizabeth if he could share Elizabeth's experiences, and sent some questions.  Liz (see her poem) found this difficult to do, but today when I was with her, we looked at Andrew's questions and she answered them.  I sent them up to Andrew not realising that the event was today.  This evening one of Joanna's friends texted her to say she was at the event and had heard Elizabeth's story.  Great timing.

Message Seventy Eight

We all continued to be touched by the never ending love and support our family receives every day.  It has not wavered, even as the time goes by, and this life style becomes more normal.

Elizabeth works hard every day on her physio and OT.  In physio she is learning to balance her weight on one leg, and then transfer it to the other.  She is walking up and down the corridor.  Her left foot continues to need a 90 degree splint to enable Liz to kick it forward as she moves.  She has two people, one on either side to help her balance. 

She is cycling in the evening for about 15 minutes hard, and then 15 minutes soft peddling.

People from both of the prospective rehab centres Liz has applied to have visited to talk about the next stage when 6 months in hospital comes to an end.  One is near to one of my work bases in Leicester.  The other is in Loughborough opposite the Hospital.  Liz felt both would be suitable, and she is open which ever is approved by financing.  (We shall see.)

Looks like a chopper? (bike from the 70's)

The Only Time I’ll Write About Pain, by Elizabeth Starr

Message Seventy Seven

My imagination wants to see this picture as Caesar, with three lictors about her.  Elizabeth said that's ridiculous because she is not Caesar, and her physio's are not lictors.  That's the state of our conversations these days.

Elizabeth has been doing a lot of supported walking, and her left big toe is beginning to move.  This is the last area of no movement, so it's lovely to see a wiggling toe.  Today she was sad to see L, her OT, move on to pastures new.  Liz suggested that L should get a guard of honour by the door, the tradition offered to patients when they leave.  L will be greatly missed by Liz.

Liz has appreciated  her visitors. Taiyebah, came.  She is looking into a job at the hospital.  Liz's great uncle and aunt, Lis and James, and Sandra were in town for our friend Lala's inaugural lecture as an Arts Professor at DeMontfort University, and visited her too.  Things continue to progress well, with another 6 or 7 weeks to go, and clear signs that every minute on Ward 2 means progress.

Message Seventy Six

"Nothing in the notes!"  If only there had been some reference in Elizabeth's notes to her trip home last Wednesday.  The therapists agreed Liz could leave the ward for about three hours at a time, but they hadn't recorded it, and they don't work at the weekend.  We were all on tender hooks, with cinema tickets bought.  Elizabeth did her special look, and the ward staff decided to take a risk.  And the film? - How to Train your dragon III - (It's a dragon thing). Today it was lunch with Charlie and Jill.  Whoohoo.

Phoebe stopped off on her way to Nottingham Uni, and joined in with the dragon thing.

Elizabeth also received her new bespoke wheelchair, a gift from the NHS.  It is very fine, and includes a large bag for things on the back.

So Elizabeth is getting out of the ward.   We decided Lala's inaugural lecture would be a trip too far at this time.

A walk in the park

Lunch with Charlie and Jill